What I Think? What I Know? simply me being me.

 

I got pretty fired up last night  a friend was not grasping why? He did not understand Why so many people fund research for  cancer. Why I specifically fight for childhood cancer? I also had a hard time waking up this morning. I also realized  I can wake up every day without a disease. I also realized I have parents who are close friends of mine who have lost their children, currently losing their children and even had their lives kidnapped by cancer for days, weeks, months, and years. I then realized again why I wake up every morning and do what I can. Please take a moment of your time to take in a little understanding.

If there is any good out of the supreme court ruling today its these 3

  • The Act prohibits insurance companies from denying coverage based on pre-existing conditions. Previously, many young adult survivors trying to find coverage were told they were “uninsurable” as a result of their cancer. Of the nation’s 350,000 childhood cancer survivors, two-thirds face severe or life-threatening late effects, which makes insurance coverage an absolute necessity for this population.
  • The Act mandates that all children, including childhood cancer survivors, be allowed to stay on their parents’ health care plan up to age 26. Before passage of the legislation, many young adult cancer survivors found themselves in an insurance gap - dropped from their parents’ plan and unable to purchase their own coverage.
  • The Act prohibits insurance companies from imposing lifetime caps on coverage. Previously, childhood cancer survivors could find that treatment for late effects, such as a second cancer or other health complication, would “max out” their insurance coverage, forcing them into enormous medical debts.

Profound words By a Dr. at the 23:40 mark “Living in a time we really have a shot at it we really have a shot a changing the lives of children with disease” Most remarkable time in the history of human biology”. Childhood Cancer you best watch out!

Time To Measure Up

Time to measure whats really important to you from time to time… To me without a doubt its doing what I can.. To me that’s doing what I can for childhood cancer. I have met countless children in treatment, some kids just out of treatment, parents who have lost their CHILDREN or INFANTS, and even met children who will one day lose their battle. Enough is enough if children are the future, if life is important, if being a parent is important then why aren’t we doing something for the kids who typically can’t fight and advocate for themselves. Parents are left way to grief stricken and medical bill burdened to fight… We have to fight for them. The place is where? Here! The time is NOW!! We need to give that fighting Chance. Actions speak louder than words. Enough is enough Measure up.

Looking for a Cancer Cure in the Cloud

“For far too long, children with pediatric cancer have relied on the hand-me-down adult cancer treatments which are brutally harsh and, in many cases, more punitive than curative for children. We’ve given them to kids because something is better than nothing,” said Patrick Lacey